instituto de biologia molecular e celular | institute for molecular and cell biology
i3S, in collaboration with the Portuguese Alliance of Rare Diseases Associations, is commemorating the International Rare Diseases Day, celebrated on February 29thunder the slogan "Join us in making the voice of rare diseases heard”.
The event will take place at i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, on Rua Alfredo Allen 208, 4200-135 Porto.
14.00 Opening
14.10 Europlan Conclusions - Marta Jacinto, Aliança
Moderators: Jorge Sequeiros, CGPP-IBMC, i3S; José Carlos Machado, IPATIMUP, i3S
14.40 Where do we stand after a year of Europlan: State-of-the-Art on DR and MO Legislation
Round-Table with Patients Associations, Representatives of health, research, education and social security authorities.
Moderators: João Silva, CGPP-IBMC, i3S; Paula Silva, FMUP/ IPATIMUP, i3S
16.20 Coffee Break an Cultural Moment
(Piano concert, painting exhibition and poetry reading, by members of the patients associations)
17.30 Closing remarks
Registrations are free but mandatory.
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