Rare Diseases Day 2016

i3S, in collaboration with the Portuguese Alliance of Rare Diseases Associations, is commemorating the International Rare Diseases Day, celebrated on February 29thunder the slogan "Join us in making the voice of rare diseases heard”.

The event will take place at i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, on Rua Alfredo Allen 208, 4200-135 Porto.

Program:

14.00 Opening

14.10 Europlan Conclusions - Marta Jacinto, Aliança
Moderators: Jorge Sequeiros, CGPP-IBMC, i3S; José Carlos Machado, IPATIMUP, i3S

14.40 Where do we stand after a year of Europlan: State-of-the-Art on DR and MO Legislation
Round-Table with Patients Associations, Representatives of health, research, education and social security authorities.
Moderators: João Silva, CGPP-IBMC, i3S; Paula Silva, FMUP/ IPATIMUP, i3S

16.20 Coffee Break an Cultural Moment
(Piano concert, painting exhibition and poetry reading, by members of the patients associations)

17.30 Closing remarks

 

Registrations are free but mandatory.


Home | Site Map | Contacts | Credits | Privacy & Cookies | Intranet | Social Networks |


rua alfredo allen, 208, 4200-135 porto - portugal | tel +351 220 408 800 | email: info@i3s.up.pt | © copyright 2010 ibmc